Project
The completed KIDSCREEN project was funded by the European Union within the 5th EU Framework Program "Quality of Life and Management of Living Resources" (QLG-CT-2000-00751) and covered a period of three years (2001-2004; Ravens-Sieberer et al., 2001; Herdmann et al., 2002; Koopmann et al., 2003; Mazur & Mierzejewska, 2003; Rajmil et al., 2004). The participating countries were Austria, the Czech Republic, France, Germany, Greece, Hungary, Ireland, the Netherlands, Poland, Spain, Sweden, Switzerland, and the United Kingdom.
The aim of the project was to develop a cooperatively created and standardized screening instrument for the quality of life of children and adolescents that can be used in representative national and European-wide health surveys. The instrument will also serve as a generic tool to assess the quality of life of chronically ill children and adolescents. The aim is to identify children and adolescents at risk based on their subjective health and to formulate suggestions for appropriate interventions by using the KIDSCREEN questionnaires in health research and health reporting. More on the methodology can be found at Methodology and in the publication by Krause et al. (2021), which can be downloaded at the bottom of this page.
Close cooperation exists with the EU-funded project DISABKIDS. In close cooperation with its sister project KIDSCREEN, the DISABKIDS project developed disease-specific questionnaires to assess the health-related quality of life of children and adolescents aged 4 to 7 and 8 to 16 years with a chronic disease and/or disability such as bronchial asthma, infantile cerebral palsy, diabetes mellitus, epilepsy, juvenile arthritis, cystic fibrosis, neurodermatitis and obesity. Both projects collaborated as closely as possible during the development phase of the instruments to ensure a common methodology and the widest possible scope of application.
The KIDSCREEN-10 is recommended by the International Consortium for Health Outcomes Measurement (ICHOM) as part of their standard set of outcome measures for anxiety disorders, depression, obsessive-compulsive behavior disorders, and post-traumatic stress disorder in children and adolescents.
References
- Ravens-Sieberer, U., Gosch, A., Abel, T., Auquier, P., Bellach, B.-M., Dür, W., Rajmil, L. & the European KIDSCREEN Group (2001). Quality of life in children and adolescents: a European public health perspective. Social and Preventive Medicine 46, 297-302.
- Herdman, M., Rajmil, L., Ravens-Sieberer, U., Bullinger, M., Power, M., Alonso, J., and the European KIDSCREEN and DISABKIDS groups (2002). Expert consensus in the development of a European health-related quality of life measure for children and adolescents: a Delphi study. Acta Pediatrica 91 (12), 1385-90.
- Koopman, H.M., Bruil, J., Detmar, S.B., Baars, R.M., & Wit, J.M. (2003). Afdeling Kindergeneeskunde LUMC, J Bruil & S Detmar TNO Preventie en Gezondheid Afdeling Jeugd, Het meten van de Gezondheidsgerelateerde Kwaliteit van Leven van kinderen met een chronische ziekte, [Measurement of HRQOL in children with a chronic illness]. Tijdschrift voor kindergeneeskunde 3, 71, 82-88.
- Mazur, J. & Mierzejewska, E. (2003). Jakosc zycia zwiazana ze zdrowiem dzieci i mlodziezy - koncepcje metody badawcze i wybrane zastosowania. Medycyna Wieku Rozwojowego. (Health-related quality of life (HRQL) in children and adoles-cents- concepts, study methods and selected applications. Developmental Period Medicine) VII(1 Pt 2):35-48.
- Rajmil, L., Herdman, M., Fernández de Sanmamed, M.J., Detmar, S., Bruil, J., Ravens-Sieberer, U., Bullinger, M., Simeoni, M.-C., Auquier, P., and the Kidscreen group (2004). Generic Health-related Quality of Life Instru-ments in Children and Adolescents: A Qualitative Analysis of Content. Journal of Adolescent Health 34, 37-45.
